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The Portrait Project gives clinical trial patients a platform to share their unique experiences and influence change

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Clinical trial participants, caregivers and health professionals share unfiltered accounts of their personal health journeys and provide insights into their experience in clinical trials.

BERWYN, Pa., Aug. 1, 2023 /PRNewswire/ — Mural Health has launched a non-commercial initiative to share the stories of the people who make clinical research possible. The Portrait Project is a collection of stories detailing the personal experiences of trial participants, caregivers, and medical professionals. The accounts are uncensored and, often, brutally honest. Each story serves to educate by sharing our industry’s victories, what is working, where we have fallen short, and opportunities to improve. In all cases, The Portrait Project aims to amplify the voices of patients and their loved-ones.

Headlines involving clinical research often focus on scientific breakthroughs. But behind every groundbreaking innovation are thousands of people – oftentimes critically ill people who are searching for a miracle – who were required to prove the effectiveness of the therapy. Yet, so often, little is known or understood about these people, why they enrolled in the clinical study, and how the trial affected them and their loved ones. The Portrait Project serves to share these often-overlooked narratives, increase awareness, dispel misconceptions, reduce stigmas, and create a community that collectively uses its voice to influence positive change throughout the clinical research ecosystem.

Stories from the Portrait Project cover the spectrum of experiences, from cancer survivors who want to alleviate fears of the newly diagnosed, to caregivers that emotionally recount their journey that ends in the death of a loved one. Certain stories highlight how clinical research profoundly changes lives for the better. Other stories will be critical of the clinical research industry’s imperfections, recounting moments of sadness, loss, and personal devastation.  As one such contributor comments:

“If you’re fortunate enough to survive, what you say has more weight to it. I knew I wanted to use that currency for good. And if I could make the experience less scary for someone, I was willing to be the cancer girl.”

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Storytellers also offer tips for caregivers, attempting to help others better navigate complex clinical environments while also managing the immense emotional toll charged to patients and their friends and families. 

The experience of each participant is unique, but all share a common thread. Each story serves to educate its reader. Ultimately, these stories are intended to have a positive impact on other participants, or help the clinical research industry serve others more effectively.

The Portrait Project is sponsored by Mural Health, a technology company that is on a mission to make it easier to be a participant (a patient or caregiver) in clinical research.

Sam Whitaker Co-Founder & Co-CEO at Mural Health said: “The Portrait Project has been created because clinical trials are not well understood by the general public and the people who participate are often stereotyped unfairly. Unfortunately, I have also observed these gaps in understanding and stereotyping among my colleagues, the people who should be most in touch with the realities of clinical research. The Portrait Project shares the stories of patients and caregivers so the world, and my colleagues, can get in touch with who these people actually are, why they are involved, and the impact on their caregivers.”

You can access The Portrait Project on Instagram, Facebook, LinkedIn, or by visiting its website located at theportraitproject.io

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For more information, contact:

Emily Valeo, Director and Producer of The Portrait Project, at [email protected].

About the Portrait Project

The Portrait Project is an authentic open platform that highlights the lives intersecting clinical research. Patients, caregivers, and health professionals share unfiltered accounts of their personal health journeys and provide insight into the clinical trial experience.

About Mural Health

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Mural Health is a next-generation participant management platform. The Company’s Mural Link technology is designed to make it easier to participate in clinical trials, thereby improving clinical operations and the quality of clinical data sets. Mural Link offers next-generation participant payment technology that gives participants the power to choose how they receive payment and eliminates the predatory inactivity fees that are associated with prepaid debit card products. Mural Link also includes functionality to help patients arrive at site visits without incurring a cash expense (free rides), and empowers participant communication with two-way secure messaging and experiential feedback, which informs study personnel how to adjust operations, optimize for a positive participant experience, and proactively prevent attrition. Reach out to us to learn more about our capabilities, at www.muralhealth.com or [email protected].

 

View original content:https://www.prnewswire.co.uk/news-releases/the-portrait-project-gives-clinical-trial-patients-a-platform-to-share-their-unique-experiences-and-influence-change-301890571.html

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Digital Currency Initiative Launches in Taiwan by Collaborating with Prestigious University

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In an innovative effort to revolutionize digital financial education, a prominent digital currency provider has teamed up with a renowned university in Taiwan. This strategic collaboration aims to equip students with advanced knowledge and practical experience, preparing them for the future of finance.

Empowering Future Financial Professional

The partnership focuses on immersing students in the complex world of digital assets, blockchain technology, and cutting-edge financial instruments. Industry experts will offer invaluable insights and mentorship, enhancing students’ understanding and skills in this rapidly evolving field.

Curriculum Highlights:

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  • Blockchain Principles: Foundational knowledge of blockchain technology.
  • Critical Thinking: Developing analytical skills for problem-solving in digital finance.
  • Risk Assessment: Strategies for identifying and managing financial risks.
  • Legal Compliance: Understanding the regulatory landscape and compliance requirements.
  • Career Insights: Exploring potential career paths in the digital finance industry.

Commitment to Digital Economy Growth

This initiative underscores a commitment to fostering the digital economy’s growth by highlighting the stability of digital assets against traditional currencies. The newly introduced digital token combines traditional asset stability with blockchain security, offering a robust financial instrument for the future.

The digital currency provider has a long-standing history of promoting blockchain education and advocating for financial inclusivity. By facilitating cross-border transactions and investing in emerging markets, the organization continues to play a crucial role in shaping digital finance’s future.

Advancing Financial Literacy and Inclusivity

This collaborative effort represents a significant step towards democratizing financial literacy and empowering individuals worldwide to engage with the evolving digital currency landscape.

Additional Facts:

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  • Taiwan’s Blockchain Hub: Taiwan actively promotes itself as a hub for blockchain and digital currency innovation through various initiatives.
  • Research and Development: The partnership is expected to spur increased R&D activities in digital assets, benefiting both academia and industry.
  • Regulatory Exploration: Taiwan’s government is interested in exploring regulatory frameworks for digital currencies and blockchain technology, creating a supportive environment for such collaborations.

Key Questions Addressed

  1. Impact on Adoption: How will the collaboration between the digital currency provider and the university impact the adoption of digital currencies in Taiwan?
  2. Skills and Knowledge: What specific skills and knowledge will students gain from the curriculum focusing on blockchain technology and digital assets?
  3. Regulatory Compliance: How does the initiative address potential regulatory challenges and compliance issues in the digital currency space?

Advantages and Disadvantages

Advantages:

  • Enhanced Education: Offering students unique educational opportunities in digital finance and blockchain technology.
  • Industry-Academia Bridge: Providing hands-on experience and mentorship to bridge the gap between academia and industry.
  • Economic Growth: Contributing to the growth and development of the digital economy in Taiwan and beyond.

Disadvantages:

  • Curriculum Updates: Potential challenges in keeping the curriculum up-to-date with the rapidly evolving digital currency landscape.
  • Practical Exposure: Ensuring students receive practical, real-world experience to complement theoretical knowledge.
  • Regulatory Balance: Balancing the promotion of digital currencies with the need for regulatory compliance and risk management.

The collaboration between the digital currency provider and the Taiwanese university marks a significant milestone in digital financial education. By integrating industry expertise with academic rigor, this partnership aims to nurture the next generation of financial professionals and foster the growth of the digital economy.

Source: smartphonemagazine.com

The post Digital Currency Initiative Launches in Taiwan by Collaborating with Prestigious University appeared first on HIPTHER Alerts.

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Binance Appeals Against $4.3M Penalty Imposed by Canada Regulator

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In a recent court appeal, Binance argued that it does not specifically target Canadian customers, claiming its activity in Canada is merely a byproduct of its international operations, according to a June 19 report by the Canadian Press. The exchange revealed that although it had previously attempted to establish a Canadian presence, these plans were abandoned. By May 2023, Binance had fully exited the Canadian market, citing new regulations on stablecoins and investor restrictions that made continued operations unfeasible. Despite its departure, Binance acknowledged the sentimental value of Canada, being the home country of its founder.

In May, the Financial Transactions and Reports Analysis Centre of Canada (FINTRAC) imposed a $4.3 million fine on Binance for non-compliance with anti-money laundering (AML) and terrorist financing rules. FINTRAC claimed that between June 2021 and July 2023, Binance failed to report over 5,000 transactions of $10,000 or more. Additionally, despite having multiple opportunities, Binance failed to register as a money services business within the deadlines set by the regulator.

Beyond its issues in Canada, Binance is facing a multitude of legal challenges globally. In April, a class-action lawsuit was filed against the exchange in Canada, accusing it of violating securities laws. The plaintiffs allege that Binance sold crypto derivative products to everyday investors without proper registration, breaching Ontario’s Securities Act and federal regulations. This lawsuit, representing tens of thousands of Canadian investors, seeks compensation and the reversal of unauthorized trades.

Globally, Binance has also faced significant financial penalties. In November, the exchange settled with US authorities, agreeing to a $4 billion fine for violations of anti-money laundering and sanctions laws. Similarly, the Indian Financial Intelligence Unit imposed a $2.24 million fine, the largest ever against a crypto entity in the country, for failing to comply with AML regulations.

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Binance’s regulatory and legal troubles illustrate the significant challenges faced by cryptocurrency exchanges operating across multiple jurisdictions. While the exchange continues to navigate these complexities, its ability to comply with global regulatory standards and address legal disputes will be critical to its long-term viability and reputation in the market.

Source: cryptonews.com

The post Binance Appeals Against $4.3M Penalty Imposed by Canada Regulator appeared first on HIPTHER Alerts.

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Binance.US Dealt Another Blow: North Dakota Revokes License

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Following the lead of states like Florida, Alaska, Oregon, Maine, and North Carolina, North Dakota has moved to block Binance.US from regaining its money transmitter license. This decision by the North Dakota Department of Financial Institutions (DFI) is grounded in a November 2023 guilty plea by Binance founder Changpeng Zhao on anti-money laundering charges, further questioning the exchange’s suitability for operation.

Protecting Public Interest

DFI Commissioner Lise Kruse emphasized the need to protect the public interest in her statement: “The Commissioner finds the Respondent does not continue to meet the qualifications or satisfy requirements that may apply to an applicant for a new money transmitter license.” This decision adds North Dakota to the growing list of states placing Binance.US in regulatory “penalty boxes.”

Global Troubles and US Regulatory Concerns

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The regulatory issues faced by Binance.US in the United States reflect broader global challenges. For instance, a recent regulatory conflict in Nigeria, which resulted in the detention of a Binance executive, raises additional concerns for US regulators, complicating Binance.US’s situation further.

Impact and Outlook for Binance.US

Currently, Binance.US is unable to onboard new users in several regions and is entirely inaccessible in over 10 states. The exchange has until July 17, 2024, to challenge North Dakota’s decision. However, the outlook remains uncertain, given the mounting restrictions and regulatory pressures.

The relatively short prison sentence for Zhao might suggest a potential course correction within Binance. By prioritizing user safety and adhering strictly to US regulations, Binance.US could potentially regain some lost ground. The exchange’s future hinges on its ability to address regulatory compliance issues effectively.

The Broader Implications

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This regulatory crackdown highlights the evolving landscape of cryptocurrency regulation. While the innovative potential of cryptocurrencies is significant, exchanges must operate within established regulatory frameworks to maintain trust and stability in the market. Binance.US’s struggle will be closely watched by the entire cryptocurrency industry, serving as a cautionary tale for exchanges that prioritize growth over compliance.

Source: bitcoinist.com

The post Binance.US Dealt Another Blow: North Dakota Revokes License appeared first on HIPTHER Alerts.

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