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The Portrait Project gives clinical trial patients a platform to share their unique experiences and influence change

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Clinical trial participants, caregivers and health professionals share unfiltered accounts of their personal health journeys and provide insights into their experience in clinical trials.

BERWYN, Pa., Aug. 1, 2023 /PRNewswire/ — Mural Health has launched a non-commercial initiative to share the stories of the people who make clinical research possible. The Portrait Project is a collection of stories detailing the personal experiences of trial participants, caregivers, and medical professionals. The accounts are uncensored and, often, brutally honest. Each story serves to educate by sharing our industry’s victories, what is working, where we have fallen short, and opportunities to improve. In all cases, The Portrait Project aims to amplify the voices of patients and their loved-ones.

Headlines involving clinical research often focus on scientific breakthroughs. But behind every groundbreaking innovation are thousands of people – oftentimes critically ill people who are searching for a miracle – who were required to prove the effectiveness of the therapy. Yet, so often, little is known or understood about these people, why they enrolled in the clinical study, and how the trial affected them and their loved ones. The Portrait Project serves to share these often-overlooked narratives, increase awareness, dispel misconceptions, reduce stigmas, and create a community that collectively uses its voice to influence positive change throughout the clinical research ecosystem.

Stories from the Portrait Project cover the spectrum of experiences, from cancer survivors who want to alleviate fears of the newly diagnosed, to caregivers that emotionally recount their journey that ends in the death of a loved one. Certain stories highlight how clinical research profoundly changes lives for the better. Other stories will be critical of the clinical research industry’s imperfections, recounting moments of sadness, loss, and personal devastation.  As one such contributor comments:

“If you’re fortunate enough to survive, what you say has more weight to it. I knew I wanted to use that currency for good. And if I could make the experience less scary for someone, I was willing to be the cancer girl.”

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Storytellers also offer tips for caregivers, attempting to help others better navigate complex clinical environments while also managing the immense emotional toll charged to patients and their friends and families. 

The experience of each participant is unique, but all share a common thread. Each story serves to educate its reader. Ultimately, these stories are intended to have a positive impact on other participants, or help the clinical research industry serve others more effectively.

The Portrait Project is sponsored by Mural Health, a technology company that is on a mission to make it easier to be a participant (a patient or caregiver) in clinical research.

Sam Whitaker Co-Founder & Co-CEO at Mural Health said: “The Portrait Project has been created because clinical trials are not well understood by the general public and the people who participate are often stereotyped unfairly. Unfortunately, I have also observed these gaps in understanding and stereotyping among my colleagues, the people who should be most in touch with the realities of clinical research. The Portrait Project shares the stories of patients and caregivers so the world, and my colleagues, can get in touch with who these people actually are, why they are involved, and the impact on their caregivers.”

You can access The Portrait Project on Instagram, Facebook, LinkedIn, or by visiting its website located at theportraitproject.io

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For more information, contact:

Emily Valeo, Director and Producer of The Portrait Project, at [email protected].

About the Portrait Project

The Portrait Project is an authentic open platform that highlights the lives intersecting clinical research. Patients, caregivers, and health professionals share unfiltered accounts of their personal health journeys and provide insight into the clinical trial experience.

About Mural Health

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Mural Health is a next-generation participant management platform. The Company’s Mural Link technology is designed to make it easier to participate in clinical trials, thereby improving clinical operations and the quality of clinical data sets. Mural Link offers next-generation participant payment technology that gives participants the power to choose how they receive payment and eliminates the predatory inactivity fees that are associated with prepaid debit card products. Mural Link also includes functionality to help patients arrive at site visits without incurring a cash expense (free rides), and empowers participant communication with two-way secure messaging and experiential feedback, which informs study personnel how to adjust operations, optimize for a positive participant experience, and proactively prevent attrition. Reach out to us to learn more about our capabilities, at www.muralhealth.com or [email protected].

 

View original content:https://www.prnewswire.co.uk/news-releases/the-portrait-project-gives-clinical-trial-patients-a-platform-to-share-their-unique-experiences-and-influence-change-301890571.html

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Ethereum ETFs Aren’t Blockchain But Is A Revolutionary Tech: Top 6 Amazing Reasons To Invest In Them

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The financial landscape is rapidly evolving, with the integration of blockchain technology and cryptocurrencies becoming more prominent. Among these, Ethereum ETFs (Exchange-Traded Funds) have emerged as a significant investment vehicle, offering exposure to the Ethereum blockchain’s native cryptocurrency, Ether (ETH), without requiring direct ownership. However, it’s crucial to understand that Ethereum ETFs are distinct from the blockchain itself and serve different purposes in the investment world.

Understanding Ethereum and ETFs

Ethereum: A decentralized platform that enables the creation and execution of smart contracts and decentralized applications (dApps). It operates using its cryptocurrency, Ether (ETH), which fuels the network.

ETF (Exchange-Traded Fund): A type of investment fund that holds a collection of assets and is traded on stock exchanges. ETFs can include various asset classes, such as stocks, commodities, or bonds.

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Ethereum ETFs: The Intersection of Traditional Finance and Cryptocurrency

An Ethereum ETF provides a way for investors to gain exposure to the price movements of Ether without directly purchasing the cryptocurrency. This is achieved through an ETF structure, where the fund holds assets linked to the value of Ether, and investors can buy shares of the ETF on traditional stock exchanges.

Key Features of Ethereum ETFs:

  1. Indirect Exposure: Investors gain exposure to Ether’s price changes without needing to manage or store the cryptocurrency themselves.
  2. Regulatory Compliance: Unlike the relatively unregulated cryptocurrency market, ETFs operate under the oversight of financial regulators, offering a layer of investor protection.
  3. Accessibility: Ethereum ETFs are available through traditional brokerage platforms, making them accessible to a broader range of investors.

Why Invest in an Ethereum ETF?

  1. Diversification: Including an Ethereum ETF in a portfolio can provide exposure to the cryptocurrency market, potentially enhancing diversification beyond traditional assets.
  2. Convenience and Familiarity: ETFs are a familiar investment product, simplifying the process of investing in cryptocurrencies.
  3. Professional Management: ETF managers handle the investment decisions, including the buying and selling of assets, which can be advantageous for those less familiar with the cryptocurrency space.
  4. Regulatory Oversight: ETFs are subject to regulatory scrutiny, potentially offering more safety and transparency compared to direct cryptocurrency investments.
  5. Potential for Growth: As the cryptocurrency market grows, ETFs linked to assets like Ether may benefit from rising prices.

Key Differences Between Ethereum and Ethereum ETFs

While both are related to the Ethereum blockchain, Ethereum itself and Ethereum ETFs represent different forms of investment:

  • Ethereum (ETH):
    • Direct ownership of the cryptocurrency.
    • Full exposure to Ethereum’s features, including staking and network participation.
    • Traded on cryptocurrency exchanges.
    • Highly volatile and largely unregulated.
  • Ethereum ETF:
    • Indirect exposure through shares representing Ether’s value.
    • Traded on traditional stock exchanges under regulatory oversight.
    • Offers a more stable and familiar investment structure.
    • Typically lower volatility compared to direct cryptocurrency ownership.

Future Considerations for Ethereum ETFs

The approval and launch of Ethereum ETFs mark a significant milestone in bringing cryptocurrencies closer to mainstream finance. They offer a convenient and regulated means for investors to gain exposure to the growing digital assets market. However, they also come with limitations, such as not allowing direct participation in the Ethereum ecosystem’s innovations, like dApps and smart contracts.

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As the market evolves, we may see more sophisticated financial products that better capture the full potential of the Ethereum ecosystem. For now, Ethereum ETFs provide a balanced option for those interested in cryptocurrency exposure within the framework of traditional finance.

In conclusion, while Ethereum ETFs offer a gateway into the world of digital assets, they should be viewed as complementary to, rather than a replacement for, direct investment in the underlying blockchain technologies. Investors should carefully consider their investment goals, risk tolerance, and the unique attributes of both Ethereum and Ethereum ETFs when making investment decisions.

Source: blockchainmagazine.net

The post Ethereum ETFs Aren’t Blockchain But Is A Revolutionary Tech: Top 6 Amazing Reasons To Invest In Them appeared first on HIPTHER Alerts.

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Nexo Reaffirms Commitment to Data Protection with SOC 3 and SOC 2 Compliance

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Nexo, a leading institution in the digital assets industry, has reinforced its commitment to data security by renewing its SOC 2 Type 2 audit and attaining a new SOC 3 Type 2 assessment without any exceptions. This rigorous audit process, conducted by A-LIGN, a respected independent auditor specializing in security compliance, confirms Nexo’s adherence to stringent Trust Service Criteria for Security and Confidentiality.

Key Achievements and Certifications

  1. SOC 2 and SOC 3 Compliance:
    • SOC 2 Type 2: This audit evaluates and reports on the effectiveness of an organization’s controls over data security, particularly focusing on the confidentiality, integrity, and availability of systems and data.
    • SOC 3 Type 2: This public-facing report provides a summary of SOC 2 findings, offering assurance to customers and stakeholders about the robustness of Nexo’s data security practices.
  2. Additional Trust Service Criteria:
    • Nexo expanded the scope of these audits to include Confidentiality, showcasing a deep commitment to protecting user data.
  3. Security Certifications:
    • The company also adheres to the CCSS Level 3 Cryptocurrency Security Standard, and holds ISO 27001, ISO 27017, and ISO 27018 certifications, awarded by RINA. These certifications are benchmarks for security management and data privacy.
  4. CSA STAR Level 1 Certification:
    • This certification demonstrates Nexo’s adherence to best practices in cloud security, further solidifying its position as a trusted partner in the digital assets sector.

Impact on Customers and Industry Standards

Nexo’s rigorous approach to data protection and compliance sets a high standard in the digital assets industry. By achieving these certifications, Nexo provides its over 7 million users across more than 200 jurisdictions with confidence in the security of their data. These achievements not only emphasize the company’s dedication to maintaining top-tier security standards but also highlight its proactive stance in fostering trust and transparency in digital asset management.

Nexo’s Broader Mission

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As a premier institution for digital assets, Nexo offers a comprehensive suite of services, including advanced trading solutions, liquidity aggregation, and tax-efficient credit lines backed by digital assets. Since its inception, the company has processed over $130 billion, showcasing its significant impact and reliability in the global market.

In summary, Nexo’s successful completion of SOC 2 and SOC 3 audits, along with its comprehensive suite of certifications, underscores its commitment to the highest standards of data security and operational integrity. This dedication positions Nexo as a leader in the digital assets space, offering unparalleled security and peace of mind to its users.

Source: blockchainreporter.net

The post Nexo Reaffirms Commitment to Data Protection with SOC 3 and SOC 2 Compliance appeared first on HIPTHER Alerts.

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Marshall Becomes First US Senator to Walk from Controversial Crypto Bill He Co-Sponsored

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Republican Senator Roger Marshall has withdrawn his support for the Digital Asset Anti-Money Laundering Act of 2023, a controversial bill he initially co-sponsored with Senator Elizabeth Warren and others. This bill, reintroduced in the Senate on July 27, 2023, aimed to bring the cryptocurrency industry into alignment with existing anti-money laundering (AML) and counter-terrorism financing (CTF) laws.

Key Provisions of the Bill

The legislation proposed stringent regulations on digital asset providers, including unhosted wallet providers, miners, and validators, by classifying them as financial institutions under the Bank Secrecy Act (BSA). It mandated these entities to adhere to BSA compliance requirements, which include extensive reporting and monitoring responsibilities. Additionally, the bill called for the Financial Crimes Enforcement Network (FinCEN) to establish regulations for reporting significant foreign digital asset holdings and to create compliance measures to address risks associated with anonymity-enhancing technologies.

Senator Marshall’s Shift

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Marshall’s withdrawal from the bill comes as a surprise, particularly given his earlier criticisms of cryptocurrencies, which he has described as a “threat to national security.” This includes concerns over stablecoins like Tether potentially facilitating illegal activities and circumventing U.S. sanctions. Despite his earlier stance, Marshall’s departure from the legislation suggests a reconsideration of the bill’s implications or an alignment with broader political and industry perspectives on cryptocurrency regulation. His office has not provided a comment on the reasons for his withdrawal.

Political and Industry Reactions

The bill had garnered significant bipartisan support, with 18 co-sponsors, reflecting a broader concern in Congress over regulating the rapidly growing cryptocurrency market. However, it has also faced criticism for potentially imposing impractical compliance burdens that could stifle innovation and push crypto activities offshore. Critics argue that the bill’s stringent requirements could inadvertently drive users toward unregulated platforms, thereby undermining its intent to enhance security and regulatory oversight.

Broader Context

The withdrawal comes at a time when cryptocurrency regulation is a highly contentious issue in U.S. politics. Former President Donald Trump has promised to relax crypto regulations if elected, contrasting with the current administration’s more stringent stance. Under President Joe Biden, the Securities and Exchange Commission (SEC) and other regulatory bodies, led by figures like Gary Gensler, have taken a more rigorous approach to regulating the sector, which has drawn criticism for being overly restrictive.

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Senator Marshall’s decision to step back from the Digital Asset Anti-Money Laundering Act reflects the complex and evolving nature of cryptocurrency regulation in the U.S. While the bill seeks to bring greater oversight and security to the crypto industry, it also raises concerns about regulatory overreach and its potential negative impact on innovation and privacy. As the debate continues, the U.S. legislative and regulatory landscape for cryptocurrencies remains in flux, balancing the need for security with the desire to foster technological innovation.

Source: decrypt.co

The post Marshall Becomes First US Senator to Walk from Controversial Crypto Bill He Co-Sponsored appeared first on HIPTHER Alerts.

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